Friday, September 22, 2017

MWNews 121

Hey look, two posts in one week. Don't get the idea that this is a trend just a lucky coincidence.  One thing I am finding is that I do not have a lot of pictures of Maeghan and William together, or I don't have a lot of them on this computer.  That is something I need to figure out.  I have pictures backed up to several different places.  I need something that will take all those pictures, compare them, and then store them all in the same place.  Right now, they are just everywhere. My phone, this computer, Juanita's computer and several online places.  I don't know which pictures are where.  I think we have over 10,000 pictures across all the different locations. Another one of those things I will eventually get around to.

I don't remember what it was I said I was going to talk about in the next post and I don't want to go back and read it to find out, so I will just jump in like I never said anything before this.  Probably repeat myself a lot and leave somethings hanging that I should explain, but hey, I am tired of writing this already.  Actually not tired of it but tired of the inability to type I seem to have developed.  Lots of going back and correcting misspelled words or erroneous characters.  It is really annoying.

William is getting a lot better at reading, not really proficient at it but he can sound out most words and read them.  He does it a lot lately so I am hoping that means he is trying and has not given up on it.  He gets discouraged a lot with not being able to do things but as long as he keeps trying, that is what I want for him.  It's a hard balance between helping him and criticizing him.  Not that we are criticizing but he sees it that way sometimes when we try to help and he just shuts down and stops trying.  With his total lack of patience with anything and his need to make sure he gets to say what he wants to say, his reactions to things are hard to judge and difficult to anticipate.  He has taken to yelling at people when they do not listen to or act the way he wants them to.  He has always talked loud and has to be told to not speak so loudly but lately, he does it when he is frustrated and feels he is being ignored.  Of course, he feels he is being ignored when you do not give him your full attention and are doing something else when he is talking to you.  It is just a difficult situation with his condition and his understanding of things around him.

I think it all comes down to his ability to read and understand and if he can master that, everything else will start to fall in place.  But it is hard and we keep working on it.  As I said, he seems to be getting better and better so maybe once he gets over that frustration, I can start to teach him how to deal with other people so they do not bug him so much.  He just wants to be friends with everyone and be part of what everyone else is doing all the time.  He is the best boy as far as manors and caring for others goes, he just has a hard time expressing it in a way that does not put others off or crowding into their space to try to be closer to others. Hard to explain without seeing him everyday and understanding what it is I mean by all this.  But I know we will get there.

Maeghan is getting closer to a time we need to make some decisions.  Decisions about what she is going to do with her life and what it is she can and may not be able to do.  She is typical in that she is interested in a lot of things but with her size and condition, there just might be things she will not be able to do.  Off hand, I can't think of any but we have to start thinking about it.

Thinking about it now, I just don't want to think about it now, so I am going to move on to something else.

Maeghan is doing really well in school.  Not great but better than most of her class, which is amazing since she misses so much school with doctors and things.  She does really well on tests and gets all her homework done on time, even when she misses most of the classes where they would explain things for her.  She just figures it out or helps her friends and they help her.

She is wanting to drive soon.  I am not sure how we are going to arrange that as she needs special modifications to any car she will drive.  I think she can get help from the government in modifying a car but I am not really sure how that will work.  If we can find out what needs to be done, I think her uncle Craig can modify a car to work for her.  Maybe my little Focus can be used, although I am not sure she likes that car and it is kind of old now.  But if we can, it would be good for her.  We still have a year and a half, when she turns 16, so we have some time to figure it out but she is hinting at it now.  I will probably have traded in the Focus by then so I might need to make sure the next car is capable of allowing her to drive it.  Again, we will see.

This entry has not had a lot of optimism about it or really good tidings for anything.  Just a reaction to how things are going lately, or for about the last year or more.  Just can't seem to get over the hump and allow us to start enjoying life again. Not that it has been bad but it has definitely not been great and there are very few times when we can say everything is going our way.  With my job, yes it is still an ongoing drama but if you can imagine it, it has gotten a thousand times worse.  The issues with Juanita's parents, the problems with Sydney leaving us and numerous other things I have not even mentioned, it has just not been a good time for us in a very long while.

Now we are dealing with Juanita losing her job and having to downsize, my greatly increased job situation and the need to spend more money on the kids as they get older, it just does not feel like we are approaching anything close to a stable situation.

But I tire of that and I am sure I do not need to put that in this blog.  So get behind me and leave me alone.

Some might ask how you can have chili on a diet but I am going to make the case for that right now.

As far as a diet goes, I am just trying to cut down on bread and I have eliminated as much sugar as I can from what I eat.  It means no pasta, no bread, no rice or anything like that.  We know how hard it is for me to give up pasta, I love my spaghetti, but I am doing ok so far.  Been about four weeks now.

On the case for chili, it is just meat, tomatoes, and chilies. Plus some spices and some meat broth.  If it wasn't for the tomatoes, which contain a lot of sugar, it would be perfect.  I add some greens on the side and I am all set.  And it is filling.  My biggest problem has always been how much I eat and not what I eat.  I generally eat healthy foods but I tend to eat a lot of them so they become unhealthy because of the volume.  I can eat a whole salad bowl of salad, which doesn't fill me up.  It just has always been a problem but I am getting old and I want to try to eliminate a lot of things that are making me feel uncomfortable and this is the biggest one.

I have been diagnosed with diabetes and I think losing weight will eliminate that, plus it will help with my heart and my sore joints and legs.  I think all of my problems stem from my weight so that is what I am trying to work on.  I'll let you know how that goes.

Again, I rolled into maudlin talk and have not entered anything upbeat and lively into this blog.  So I am going to end it now before I get into everything else that is wrong lately.  Sorry for the sad entry.  I will get better.  But that assumes I will type another entry soon and we all know how that goes.

Until next time

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